I realize 1 day after writing my heart felt plea to the neurology community that they as a group have already spoken. From what I now understand, the Liberation Procedure is being held down below the tiny level that it had sprouted.
What a shame. For now, we as a community must wait and watch while other parts of the world are providing this service. Is Georgetown still going ahead? Is anywhere in America picking up the baton? When is Buffalo due to release its data?
My only advice is to get the MRV or a "special" ultrasound and have it on a disc along with a medical history from you and your neurologist. Be ready for the wave to re-form. Because it will.
What a shame. For now, we as a community must wait and watch while other parts of the world are providing this service. Is Georgetown still going ahead? Is anywhere in America picking up the baton? When is Buffalo due to release its data?
My only advice is to get the MRV or a "special" ultrasound and have it on a disc along with a medical history from you and your neurologist. Be ready for the wave to re-form. Because it will.
Comments
It is Julie here. Thank you for looking at my films. Thank you for returning my calls, as well. I applaud you in what you have chosen to do. You are following what you think is honorable. By doing this, you will find out where this will lead. Only you will be able make it work for you in the way you think. You are a pioneer. I see what you are doing to help me could be your path. I have the words of a song that I am going to copy here. If you can, there is another blog I follow called Enjoying the Small Things. If you scroll down to the very bottom after reading all of the comments, you will find a playlist of songs. One of the songs is called Follow the Arrow.
Rosi Golan
Follow The Arrow
Follow the Arrow
Where it goes you'll know
Where it leads
Follow your instinct
You might finally
Find the one missing link
Then you'll see
What you never believed could be
You'll see
What you never believed could be
No one can tell you
When you're feeling blue
Where to call
Iron out the creases
Pick up the pieces
Wherever
They may fall
Oh Oh Oh
Then you'll see what you never believed could be
You'll see (then you'll see)
What you never believed could be
You'll see
After all the world is yours
If you take it for it's flaws
Don't expect too much from what you want
Diamonds in the rough are we
The devil wants to make a deal
But you should take to heart this sound advice
Follow the arrow
Where it goes you'll know
Where it leads
Follow your instinct
You might finally
Find the one missing link
Oh Oh Oh
Then you'll see
What you never believed could be
You'll see (then you'll see)
What you never believed could be
You'll see
MM MMM MMM...
Then you'll see what you never believed could be
You'll see (then you'll see)
What you never believed could be
Yes, we are still going strong at Georgetown. There have been 7 of us treated that I know of personally. Two more friends are on deck. A second vascular surgeon is now doing the procedure, too!
I know that Dr. Sclafani in NY, and Boston Hospital are getting closer to IRB approval. Can't come soon enough!
Nicole