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I realize 1 day after writing my heart felt plea to the neurology community that they as a group have already spoken. From what I now understand, the Liberation Procedure is being held down below the tiny level that it had sprouted.

What a shame. For now, we as a community must wait and watch while other parts of the world are providing this service. Is Georgetown still going ahead? Is anywhere in America picking up the baton? When is Buffalo due to release its data?

My only advice is to get the MRV or a "special" ultrasound and have it on a disc along with a medical history from you and your neurologist. Be ready for the wave to re-form. Because it will.

Comments

Anonymous said…
So true. Hi Mark, it is Julie here. I have compassion for all neurologists who seem fearful to do this for their patients. I can see that they do not want to perform a procedure that can reflect on their professional judgment. I met a doctor yesterday in Malibu who treats MS Patients by taking them to Mexico for stem cell treatment. I told him about what you are doing and what you have done. He wants to learn how he can help his patients with MS. He was holding two books that he wrote and bringing them to the bookstore I was just inside. The title of his book is downstairs and his email. I will get it to you. His book is about treating MS with stem cell treatment.
May 5, 2010 at 11:40 AM
Anonymous said…
Hello Mark,
It is Julie here. Thank you for looking at my films. Thank you for returning my calls, as well. I applaud you in what you have chosen to do. You are following what you think is honorable. By doing this, you will find out where this will lead. Only you will be able make it work for you in the way you think. You are a pioneer. I see what you are doing to help me could be your path. I have the words of a song that I am going to copy here. If you can, there is another blog I follow called Enjoying the Small Things. If you scroll down to the very bottom after reading all of the comments, you will find a playlist of songs. One of the songs is called Follow the Arrow.

Rosi Golan

Follow The Arrow


Follow the Arrow
Where it goes you'll know
Where it leads

Follow your instinct
You might finally
Find the one missing link

Then you'll see
What you never believed could be
You'll see
What you never believed could be

No one can tell you
When you're feeling blue
Where to call

Iron out the creases
Pick up the pieces
Wherever
They may fall

Oh Oh Oh
Then you'll see what you never believed could be
You'll see (then you'll see)
What you never believed could be
You'll see

After all the world is yours
If you take it for it's flaws
Don't expect too much from what you want

Diamonds in the rough are we
The devil wants to make a deal
But you should take to heart this sound advice

Follow the arrow
Where it goes you'll know
Where it leads

Follow your instinct
You might finally
Find the one missing link

Oh Oh Oh
Then you'll see
What you never believed could be
You'll see (then you'll see)
What you never believed could be
You'll see

MM MMM MMM...

Then you'll see what you never believed could be
You'll see (then you'll see)
What you never believed could be
May 6, 2010 at 9:56 AM
Lucky Lady said…
Mark,
Yes, we are still going strong at Georgetown. There have been 7 of us treated that I know of personally. Two more friends are on deck. A second vascular surgeon is now doing the procedure, too!
I know that Dr. Sclafani in NY, and Boston Hospital are getting closer to IRB approval. Can't come soon enough!

Nicole
May 7, 2010 at 10:10 AM
Anonymous said…
Mark, thanks for your great insight/blog. My niece is seriously considering going out of the country for the liberation procedure with Poland being first choice right now. Do you or your followers have any advice on specific Drs, hospitals, full service travel providers, or countries that are currently performing it? The research I've done on India looks pretty good... Thanks in advance!
May 9, 2010 at 9:47 AM
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